[an error occurred while processing this directive]
BBC News
Launch consoleBBC News in video and audio
Last Updated: Wednesday, 9 May 2007, 10:48 GMT 11:48 UK
Sisters in fight for cancer drug
Kate Spall with mother Pam Northcott
Kate Spall has vowed to help other patients like her mother
Two sisters have interrupted a health trust meeting to demand a cancer drug unavailable in Wales which could help their dying mother.

Pamela Northcott, 58, from Dyserth, Denbighshire, has a rare kidney cancer and could have just weeks to live.

Daughters Kate Spall and Emma Northcott interrupted a board meeting of Conwy and Denbighshire NHS Trust to demand Nexavar, available in parts of England.

The NHS Trust said it was unable to authorise use of the drug.

The sisters claim Nexavar is available within more than 70 English trusts, despite it not yet being recognised by the National Institute of Clinical Excellence (Nice).

They claim authorities in Wales are "hiding" behind the fact it has not been Nice-approved, and are refusing to use it because of its cost.

The drug, which can cost up to �40,000, is not a cure, but can help some patients.

'Judge and jury'

On Tuesday the sisters interrupted a Conwy and Denbighshire NHS Trust board meeting.

One of them, Kate Spall, told the board: "You have been the master executioner - you have played judge and jury and you have decided to curtail the life at 58 years old, of my mother."

She added: "What cowardice, you couldn't even inform us of your decision yourselves.

"I will never forget the look in her eyes when I had to tell her of your decision. You decided she was not worth saving.

Emma Northcott with mother Pam
Emma Northcott (top) joined her sister to interrupt the meeting

"You had all the information to make the right decision in the right way - instead you chose the path of obstruction, cowardice and euthanasia."

Ms Spall now spends much of her time working with kidney patients in England, and claims to have helped many win the right to have Nexavar after appealing the decision of their trusts.

She said: "I am determined to make sure nobody else has to go through this."

In a statement, the NHS Trust said the "All Wales Medicines Strategy Group (AWMSG) had decided not to recommend the use of Nexavar for patients in Wales".

It added: "The NHS in Wales is required to follow the recommendations of the AWMSG in all but exceptional circumstances.

"It had also been rejected by the equivalent Medicines Group in Scotland. The National Institute for Clinical Excellence (Nice) has yet to consider the use of this drug.

"In view of this advice, the Trust was unable to authorise the use of the drug, and any decision would therefore need to be made by the Denbighshire Local Health Board."

The trust said it intended to continue discussions with Ms Spall and the Local Health Board.




SEE ALSO
Ex-policeman criticises hospital
09 Jan 07 |  North West Wales
Hospital to share safety changes
20 Nov 06 |  North East Wales
Hospital cancer service is saved
15 Sep 06 |  North West Wales
Hospital may close surgical ward
07 Nov 05 |  North East Wales
Desperate midwives 'run ragged'
28 Mar 06 |  North East Wales

RELATED INTERNET LINKS
The BBC is not responsible for the content of external internet sites



FEATURES, VIEWS, ANALYSIS
Has China's housing bubble burst?
How the world's oldest clove tree defied an empire
Why Royal Ballet principal Sergei Polunin quit

PRODUCTS & SERVICES

Americas Africa Europe Middle East South Asia Asia Pacific